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A family is in a race against time to save the life of their six-year-old daughter Lily, after she was tragically diagnosed with a rare and deadly brain cancer.

Lily McKelvey, six, was discovered to have diffuse intrinsic pontine glioma (DIPG), a deadly form of child cancer, after falling ill last month.

Those with the condition sadly typically have a life expectancy of six to nine months. Around thirty British children a year are diagnosed with the condition.

Parents Jack and Lizzie have set up a £370,000 fundraiser to send Lily for treatment in America to save her life.


The heartbreaking news came just weeks after they discovered that only child Lily is to be a sister to a baby brother, due in June.

Lily is currently having radiotherapy to try to control the spread of the tumour but family say it is in the States that Lily can get treatment which could save her life.

Lily’s aunt, Lucy O’Sullivan, who lives in Camberwell, said: “She’s only six, and she deserves a chance. I’m just hoping that she’s going to be our miracle and she’s going to get through this and defeat the odds.

“She’s such a lovely little girl – she loves to dance, she’s very girly, she’s obsessed with cats. She’s got a little cat called Polly, who she adores. She’s so clever, Lily’s so excited about her little brother on the way, too.

“I’m just trying to get as much exposure as possible. This could affect any one of us, and there’s nothing else I can do as an aunt.”

So far, £113,000 has been raised of the £370,000 total to take Lily to the States.

Brave Lily, who lives with her parents in Marks Tey, near Colchester, is currently having treatment at Addenbrooke’s Hospital in Cambridge in an effort to maintain her health as long as possible.

After finishing the treatment, she may be able to travel to New York to a doctor who treats DIPG, in a way that is not available in the UK.

“She reminds me so much of my sister, Lizzie, when she was her age. As a parent it’s your worst nightmare.

To donate to the fundraiser to give Lily McKelvey life-saving treatment, visit the GoFundMe page here

Those who might wish to fundraise for Lily can contact her aunt Lucy on her email